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Have you got Primary Progressive Apraxia of Speech? Let's connect

Brain & Nervous System | Last Active: Nov 7 4:35pm | Replies (45)
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@101margu

I have attended NAA zoom meetings, and get good information from their programs. Seeing other people with PPAOS or PPA allows me to feel less "stuck alone". We discuss some serious things, but mostly encourage each other to communicate in other ways. Very helpful! The programs are led by Speech Language Pathologists.

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Replies to "I have attended NAA zoom meetings, and get good information from their programs. Seeing other people..."
kholden | @kholden | Sep 12 9:32am

Thanks
I'm struggling with my meds
Do you have any suggestions for meds for PPAOS?
My MGH neurologist has tried many different medications. They work for awhile. Other meds, side effects were worse than the symptoms!!
Thanks! Any help would be greatly appreciated!

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kellyejean | @kellyejean | Sep 22 11:52am

@rlu0817 seeking more info on the NAA meetings. Are those calls specific to PPAOS, or a variety of FTD?
Ty - Kellye

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