Hi,
Twelve years to get a diagnosis. A trip to ED with high BP which couldn't be controlled and the right Dr at the right time and bingo Autonomic polyneuropathy. What a relief to know I wasn't going crazy and there was something wrong with me. I now have a better understanding of all the symptoms I get and why. One big negative is there is no cure and no treatment. I mainly have bad days with the very rare, good few hours thrown in to give me hope that it is not all downhill. It interferes with my BP and makes it uncontrollable at times while usually keeping it high. It can suddenly drop to what is described as normal and I get a few hours of a great moments until it raises again. It is fair to say it has a strangle hold on some of my organs and plays hell with most of the rest. I'm lucky in that is has only hit the heart once so far and it was just a tickle to let me know it could! I get throat restrictions from time to time which restricts the ability to get sufficient air into the lungs and leaves me breathless. It completely controls my bladder, bowels and digestive system and plays havoc with the brain, memory, cognitive abilities, eyes and my stability/ vertigo.
While I'm learning to deal with some of the symptoms it is more frustrating to not have control of yourself when you want. I just have to go with the flow as and when I can.
So far, the only hint of help has been to increase the salt intake, which I can't as I'm CKD and salt is a dirty word for them.
Cheers