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Update from new echo and input needed

Aortic Aneurysms | Last Active: Aug 29 10:52pm | Replies (14)

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@boxarrow

Yes, if they aren’t listening to you, I would move on to another cardiologist.its frustrating dealing with Drs who don’t have a valid reason to wait. I feel like saying, “wait for what?” I mean there’s no benefit to waiting in my honest opinion because we are only going to get older, weigh more, etc. it’s harder on our bodies to “wait” and have surgery when we are older. The bottom line is, I have an aneurysm. It needs to be fixed. Now. I don’t see ANY benefit to waiting. It needs to be replaced, it’s not going away, it’s only going to get worse and I’m going to be older and less of an optimal candidate for heart surgery. Of course this is only my opinion. But fight the fight for your heart and a better outcome than my husband had. Best of Luck and I hope you find a cardiologist that will listen. If you don’t find that cardiologist, find a cardiac surgeon that does these grafts and repairs. Likely the surgeon will help you most. Take your CD of your echo/cT/MRI to the surgeon. If this can save even one life it’s worth it!

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Replies to "Yes, if they aren’t listening to you, I would move on to another cardiologist.its frustrating dealing..."

I've been holding out to see where the FDA goes with the new ascending aortic stent that can be installed via TEVAR procedure: the Gore Ascending Stent Graft. It was supposedly in Phase 2 trials last year.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10022529/
If my aneurysm increases in size next year, I probably need to stop waiting. (Or find one of these 19 centers running these trials.) It has held steady at 5 cm for a year and a half now. We'll see.

But I also have chronotropic incompetence, some sort of oxygen exchange abnormality, PVCs/PACs, a right axis deviation of EKG, and this new chest pain. And my doc just doesn't seem to give a poo. I have a number of other labs and imaging results that suggest a rheumatological component to all this. Given my genetics, likely Behcet's. None of that is being looked at, at all. It's more like, "Huh. That's interesting."