← Return to Newly diagnosed: being brave and fearful at the same time

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@naturegirl5

@denisestlouie Your emotional pain comes through in your post. I am honored that you chose to share your story and your fears here. To live with bowel obstruction for so long without relief until surgery and then you finally received the diagnosis of Crohn's disease. From what you've written here I can imagine that you have done everything you've been advised to keep the Crohn's disease managed. And now your recent diagnosis of mixed clear cell and serous uterine cancer. All within a few years is just too much for one person to handle.

I am filled with sadness and compassion for you. I do see that you are resilient. You may have hours or days when you feel like crumbling into a heap of anxiety and sadness but because of your resilience and determination those feelings do not last long. Is that accurate? Your resilience shows up in finding a therapist you can speak with directly and frankly about your fears. I'm thinking that your therapist creates that safe space for you to say and feel whatever comes up without the worry of holding up the person sitting across from you. I do know what you mean here. When I was diagnosed with endometrial cancer one person I worked with said immediately "do you know what caused this?". I wanted to shout (but didn't) "No!! And what difference would that make now?!!". And now whenever I see her she gives me "that look" and I want to cringe when she asks about my health. I do have family and friends who showed up for me then and still do that now. They listen and they do not judge. Have you figured out yet who such people are in your life?

I don't think any of us can claim that we did everything possible to be good to our bodies. Sure, we may have maintained a healthy diet, exercised, refrained from smoking or alcohol, tried to minimize stress. But for every minute of our waking day? I sure didn't do that and yet like you I wondered if I did something wrong. This is my way of saying that I have felt this worry about what "I did wrong" and blamed myself.

I learned a meaning of Hope that is most helpful for me and perhaps for you. Hope is the expectation that something good will happen because you are working with your cancer care team and you have a treatment plan that you are following.

How do you care for yourself when you feel overwhelmed?

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Replies to "@denisestlouie Your emotional pain comes through in your post. I am honored that you chose to..."

When I'm overwhelmed I write. I'm am also dyslexic so writing wasn't something that I did do until I got sick 2 years ago. I just had to get the voices out of my head. I'm currently working on a memoir. I handwrite it. It just seems more therapeutic when it comes through my hands and a pen. I started it because I wanted to write my story in a positive way so that I could tell myself how I became the person that I am. I do like myself and I want it to tell how my trials throughout my life have made me the person that I am today. I don't intend to make this a public memoir but I do read it to my therapist as I finish each section. That's also very therapeutic.
Past two days I have just been so sad about the reality of my situation. And that is coming off of being in a very positive place for the past 2 weeks. All that positivity felt like I was being in denial. I have conflicting narratives going on in my head. I have every intention to be back in that positive side. It Is some much better way to live than to being sad. Thank you for your comments. I think I joined this group so that I could have a safe place to say what I need to say and I really need the comments. Thank you thank you thank you

This level of women supporting each other is amazing. Empathy. I often feel isolated because no one talks about Lichen Sclerous or vulva cancer. It is rare but also has limited to no research and as a result limited options for effective treatment.