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Have you got Primary Progressive Apraxia of Speech? Let's connect

Brain & Nervous System | Last Active: Nov 7 4:35pm | Replies (45)
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@rlu0817

Your frustration and feelings are understandable- I wish we could more easily educate others about how hard this is. I've attached an awareness card and education pamphlet, if it's helpful to share with others.

Also, the National Aphasia Association holds monthly meetings for patients with PPAOS and PPA and their care partners: https://aphasia.org/stories/join-our-monthly-ppa-chats/
@101margu, have you attended these?

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Replies to "Your frustration and feelings are understandable- I wish we could more easily educate others about how..."
101margu | @101margu | Aug 29 3:28pm

I have attended NAA zoom meetings, and get good information from their programs. Seeing other people with PPAOS or PPA allows me to feel less "stuck alone". We discuss some serious things, but mostly encourage each other to communicate in other ways. Very helpful! The programs are led by Speech Language Pathologists.

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