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Having lobectomy tuesday aug 6---so confused. nobody answering my ???
Lung Cancer | Last Active: Sep 2 1:34pm | Replies (44)Comment receiving replies
@julie67 Julie, I am only now catching up here on your painful last few weeks. You grabbed me right away with your early comment about "why did I go through this if it hit the lymph nodes?" I knew in advance that the lymph nodes would be tested at the time of my surgery. I also knew after surgery they appeared clear, but they needed to wait for the results. Well, in my case I had one lymph node come back positive, and I burst out crying (and I am not a cryer.) I thought it meant the end, too. But it really means some more work to be done. And, in my case it was a few rounds of chemo. See what your oncologist says. And, if I understood you right, what the other one says, too. You can then decide from there. I'm late with offering you a suggestion with the pain but what worked best for me was what a nurse suggested: take the narcotic pain pill and the Tylenol on the same 6-hour schedule as the Tylenol. You wait 2 hours longer for the pain pill, but the double pill effect really helped. That and a pillow they had me push into my chest and cough. It still was awfully painful, but the pillow muted it a bit. I live outside of Indy and if I lived closer, I would offer to help with your animals, since I feel your pain about that. I just did some online searches down there since I used to work with some non-profits down there and was familiar with many of them. Did you try SWIRCA? Their website mentions both in-home care and Medicaid Waivers. Hang in there and keep pulling for yourself - we are!
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Thank you so much! It has become even MORE of a nightmare. I did try Swirca, thank you for reseawrching for me!! I have been in the hospital again the past 2 days. Turned out the reason i couldnt' do anything/breathe was I had fluid on my lungs from the lobectomy. I just figured it was normal. Only when I started coughing and gasping Saturday night did I realize something was wrong. So they hospitlized me for a DAY for what I learned yesterday was an out-patient prodecdure done by a NP! So much more stress because my rabbits had gotten into a major fight when one got out right before this happened and i couldn't catch one to see if he had injuries. So sat in the hospital thinking i;d have a decaying pet when i got home when there was no need to BE in the hospital. So now lobectomy has been 3 1/2 weejs and i am just now starting to breathe. I feel like i won't recover now since i've been so long with the lung hindered from the fluid. Both oncologists have now kinda told me to go with the other one because i am still too sick and sore to undergo the port placement so i canceled it...was set for next week the 4th. No way can my body take this. how long is it supposed to be from lebectomy to port placement to chemo? Seems i am letting this apread because everything has gone wrong and again, no home health aide who may have recognized this was more than it was and gotten the fluid off sonner. just a disaster. So i don't know what i am doing now. Seems i should be asking the easiest way to kill myself at this point when the cancer spreads. I just don't know when i will feel like having a port put in. I still cant do anything. house is covered in trash and now rabbit feces allllllll over since the fight. sheesh. no idea but thank you. Social worker did talk to me again yesterday at hospital. no help availble so i just am tired of fighting and nothing going right.