What was the side effect you had from the Kevzara injections?

I didn't have much success with tapering off Prednisone either until Actemra was started. To my knowledge, there is no "single best way" to taper off Prednisone. I was on Prednisone for 12 years so my taper was "painstakingly slow" with the emphasis on pain.

I sincerely hope the Actemra infusion works. I have not done Kevzara injections but I started with Actemra injections every other week. I had a good response to injections every other week but a better response to Actemra injections weekly. Part of the reason I started out slowly with less frequent injections was because my rheumatologist wanted to "play it safe."

I'm now doing a monthly infusion of Actemra. My initial infusion was more about tailoring my Actemra dose to my exact need and also to see how long I can go between infusions. Subjectively, I told my rheumatologist that the infusion of Actemra worked better than the injections. He was interested and he wondered how the injections compared to an infusion.

I don't worry too much about my infusion dose but my rheumatolgist says I don't get anywhere near the maximum recommended dose. I have gone 7 weeks between Actemra infusions but my inflammation markers ticked up along with some of my symptoms. My rheumatologist says we better stay with an infusion every 4 weeks.