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Will I remain a mystery?

Digestive Health | Last Active: Aug 28 3:59pm | Replies (28)

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@hyrulewarrior

Hello everyone, hoping this will notify those who have been on this thread before. I know it’s been awhile, I’ve been battling a lot of personal things I’d rather not share however this has put me a little behind in everything. Along with this the Mayo Clinic told me they do not take my insurance or anything like it, I can’t afford to leave AZ let alone pay out of pocket for a doctor it’s just not in my cards, I’m back to trying to find a doctor that’ll take my insurance and give me the time of day. So far no luck, but I’m still hoping. On the bright side my primary care physician was able to fight with my insurance and get me on linzess!! This medication has helped me SO MUCH!! it took a bit for it to start working right but it’s been so helpful going to the restroom properly and it’s definitely helped me avoid flare ups of vomiting as I’m not horrendously backed up on top of everything else. The insurance gets stupid about it so please pray I get more refills because this helps me more than anything has so far!! I appreciate everyone here and I hope you all have an amazing day, I wish I had bigger better updates for you guys but it’s been so long and I felt I should share what progress I do have 🙂

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Replies to "Hello everyone, hoping this will notify those who have been on this thread before. I know..."

Hyrulewarrior,
It's Shelley again. I just re-read your initial message. Did you get the answers from your tests? Were they helpful? Did your endoscopy have biopsies taken, to be tested for lots of things, I am thinking celiac disease, cuz that was the final diagnosis, after 5 years of playing the guinea pig for mega doses of vitamin D, iron infusions. My calcium is too high, for me, I am 65. It seems to be related to potassium levels in some cases. You mentioned your Potassium and such were plummeting...what others are plummeting? How about your Calcium, Magnesium, vitamin D, PTH levels?
For me, I have had to always supplement Linzess/others with miralax...now many years later I have to supplement with 2-3x the normal amount of miralax and use some Metamucil, I have found that the gummies of Metamucil are much better, for me. But I must only take them when I'm taking the miralax. Do you have meds that are effective for you, for the nausea? Zofran is what the hospital always tries to get me to take, but not for me, Phenergan is much much better. Compazine, old med, but very strong and effective, 🤪if you're not highly allergic to it 🤪, like I found out while 3 months pregnant with twins and puking my guts out, while in the hospital for puking my guts out. Do any of your meds, that you need, but might puke out, available by auto injections? Gosh, I hope you get some relief from somewhere. ShelleyW