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Introductions: Are you caring for someone with dementia?

Caregivers: Dementia | Last Active: Aug 16 2:33pm | Replies (762)
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@dianajane

@virginiatc hi thanks for the tips. I am caregiver for my husb. He was diagnosed with PPA, non stroke related so speech therapy was not successful. Alzheimer dementia has been manifesting itself rather quickly. He was falling and has bladder and prostrate issues. Up every 45 min. at nite to urinate, we were both getting no sleep as I was unable to allow him to get up alone. Ended up using a urinal so he stayed in bed and I did not have to help him up to get out of bed. I have back issues. He has been in nursing home for 3 weeks. It's not going well. Unable to communicate but was pleasant at home. Now he is a different person totally. Angry, not sleeping at night, wandering and Won't let anyone help him in case he falls. It is a long journey.

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Replies to "@virginiatc hi thanks for the tips. I am caregiver for my husb. He was diagnosed with..."
Scott, Volunteer Mentor | @IndianaScott | Jan 29, 2019

Agreed, @dianajane a long journey. I know each patient with dementia is different, but in my studying of this disease while I worked for the national Alzheimer’s Association I remember any change for a dementia patient most often caused a downward change in them. This was certainly true of my MIL with hers.

It is a tough road for our loved ones and us as caregivers.

Strength, courage, and peace

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virginiatc | @virginiatc | Jan 29, 2019

@dianajane, I am sorry you have to deal with those sleepless nights along with everything else. The urinal is a great idea and one I may use when and if the time comes. I used a bed side commode for my mother when she was with me but I needed to transfer her and she was an almost complete lift. We perfected the transfer but I think it took its toll on my back. I think your husband may feel "lost" with this change. If it is a permanent move for him, I hope he makes an adjustment soon. I sure hope you are getting good sleep and taking care of yourself in spite of the worry. One day at a time.

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