Agreed, @dianajane a long journey. I know each patient with dementia is different, but in my studying of this disease while I worked for the national Alzheimer’s Association I remember any change for a dementia patient most often caused a downward change in them. This was certainly true of my MIL with hers.

It is a tough road for our loved ones and us as caregivers.

Strength, courage, and peace

@dianajane, I am sorry you have to deal with those sleepless nights along with everything else. The urinal is a great idea and one I may use when and if the time comes. I used a bed side commode for my mother when she was with me but I needed to transfer her and she was an almost complete lift. We perfected the transfer but I think it took its toll on my back. I think your husband may feel "lost" with this change. If it is a permanent move for him, I hope he makes an adjustment soon. I sure hope you are getting good sleep and taking care of yourself in spite of the worry. One day at a time.