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MAC & Bronchiectasis | Last Active: Aug 28, 2024 | Replies (10)
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Sorry to hear about your diagnosis, I'm currently 25 years of age and just been diagnosed with Mac cavitary disease a few months ago. Started antibiotics no mention of surgery yet which surprises me as the cavity is 9.2 cm by 9.2 cm, but I also would decline surgery as there are so many risks
Replies to "Sorry to hear about your diagnosis, I'm currently 25 years of age and just been diagnosed..."
If you have not developed scar tissue in or around the cavity, antibiotics should be successful. It's usually chronic infections that may have surgery as the cavity tends to trap things
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Hug hug!! I belive your cavity will shrink after you use Arikayce, many successful stories, some patients' cavity shrank from 10 cam to 4cm, as I saw. As you are so young, your healing will be quite faster I am sure! Surgery (minimally invasive) has certain risks but it has promising outcome as well. I will follow my doctor's advice! But I will seek second opinion too! Good luck to all of us in this forum! I hope everyone finds the customized treatment plan and has a quick recovery!!
I happen to see an article that patients who are sensitive to Macrolide antibiotics like Azithromycin have a cure rate from 50% to 90%! Cavitary disease has at least 50% cure rate and nodular disease at least 80% cure rate. So MAC is curable to most people, good luck to you!