← Return to Introductions: Are you caring for someone with dementia?

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@virginiatc

My caregiving life began with taking in my mother 19 years ago and keeping her with me until her death 5 yrs later at age 99. That was my training, and above all it was my way of helping to make her final years better than they would have been. She was my hero and I felt I owed her plenty. Than a few years later my husband started doing things out of character and with some help from our dr. we came to the conclusion he was dealing with dementia symptoms. No in depth testing was ordered or done. He has become more and more dependent on me, unable to drive happened 8 years ago. All of his participating activities ended, like golfing, running, etc. Now he needs help with everything, all his A.D.L. need assistance from me. It is just he and me. And I was very able until my spinal health started to require therapy and more therapy. After 2 MRI's, and more physical therapy I was diagnosed with degenerative disc disease with severe stenosis in the Lumbar spine which I am now getting injections for pain. Tomorrow will be my 3rd injection. May have to go to a plan B which will probably be surgery. I am 77 and in otherwise good health. As long as I can keep on my feet and be able to move without pain, I think I can take care of my husband. My challenges now are getting rid of the constant pain that is effecting my everyday life, and of course staying optimistic as we go thru each day together. My husband is aware he is not his old self, he seems powerless to help in any way. One thing I am so thankful for, he is not a mean person and if I take him by the hand and ask him to go with me to the bathroom to take his shower, he will. He initiates nothing and does not remember things that happened yesterday. We take one day at a time. That is the only way I have survived, I believe. My love for this man keeps me going. And now, this site, with your posts will help alleviate the lonesome feeling. Thank you.

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Replies to "My caregiving life began with taking in my mother 19 years ago and keeping her with..."

Thank you, @virginiatc for the background. I agree so very much with your statement that love keeps you going. It was all that allowed me to be my wife's caregiver for her 14+ years.

I can also understand your concern about your back. After the first four years of caregiving I had to have a spinal fusion and during the final years injured my left knee and developed carpel tunnel in both hands from repetitive lifting. It is good to hear you are seeing a doctor to take care of your back! I hear those shots can be a huge help!

Caregivers are truly amazing people! We get thrown into the breech and do amazing things for those we love! You are to be congratulated on all you did for your Mom and all you are doing for your husband.

It is so challenging when our loved ones can't help even though we know they want to and wish they could!

Again, I am really glad you have found Mayo Connect!

Looking forward to hearing from you again whenever you want to visit.