Tuckerp, Thanks for your quick reply and sharing your wife's experience. I couldn't tell from your note if she is still alive, but it seems like she went through the ringer. When I hear other peoples' stories it make me feel lucky.
As to my experience with PMR I feel terrible every morning, but by 11:00am much better and by evening I feel normal. I just need to suck it up and deal with the mornings as best I can so that I can stay on the immunotherapy.
Your story and mine are examples that every drug has side effects and it's all about balancing the risks and benefits and then being brave when a disappointment comes along.