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Any Tips For Tapering Off Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 5 9:44am | Replies (79)

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@marymckeith

Thanks so much for replying. I tapered down to 1mg. prednisone. Have felt absolutely terrible, So weak and tired. My rheumatologist wanted me to try infusions of (I guess is a biologic) called Symboni. My ins probably won't cover Actemra. After two infusions I can't tell any difference. Maybe worse. They say to wait and I have tried to. Now she wants me to go up to 3 mg of prednisone before I see her In Sept. My whole body ached and I have been miserable and ready to give up completely. I should add my primary thinks I have PMR. My rheumatologist insists I have RA. I know it is hard to diagnose. I had thought my cortisol would have kicked in at such a small amount of prednisone.

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Replies to "Thanks so much for replying. I tapered down to 1mg. prednisone. Have felt absolutely terrible, So..."

Not sure but from what my doctors have said and what I've researched, a defining diagnosis of PMR is if the Prednisone helps you right away. I was in excruciating pain and so sick for months before starting Prednisone. My sister picked up the scrip and brought it to me at 3:30 pm, 10 mg, and by 6 pm I was completely pain free and feeling great. Less than 3 hours. Somepeople i think it takes maybe until the next day but I believe it always kicks in fast if you have PMR and doesn't with anything else.