← Return to Head & neck radiation side effects continue, especially swelling

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@hrhwilliam

Hi @jimfitz and welcome to the Head and Neck group. The pain moments you are having on your tongue is typical after radiation for several months if not a few years. Sorry to tell you that but at least it’s just the tongue, not neck, shoulders, jaw, arm or ears which seems to be more common.
I think if the doctors told you what to expect, you might have jumped off a cliff rather than go through this fun house.
It will get better, I promise. The recovery from radiation is the slowest wound recovery imaginable unfortunately.
Chart your improvement on a week to week basis and you will probably see improvement better that way. The eating issues are just something you will have to work out over time. It is rare for any of us to ever return to pre-cancer normal. Hopefully you will find some positives from this experience as most of us have as time goes by. In the meantime, this is a great place for coping ideas and questions to be answered. Courage.

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Replies to "Hi @jimfitz and welcome to the Head and Neck group. The pain moments you are having..."

Thanks so much for your reply. I am finding better information here than from initial meetings with doctors. Its always better to talk to someone a little ahead of where you are to find out what’s coming down the line.Even if i knew its not like i had alot of choice in the matter.its just nice to know your not alone in this.which sometimes it feels like. I thank you for reaching out to me and hopefully one day i can help someone understand what they are going through as well.