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Any Tips For Tapering Off Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 5 9:44am | Replies (79)

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@andirae

I have been tapering for about 6 months now. I started at 20mg and am working on 5mg. Once I got below 10 I did have some minor discomfort. Each time I found I had an adjustment period. Right now I'm not sure what is going on. This is something a little new for me. I have been on 5mg for 4 weeks now. A couple of weeks ago I had about 4 days when there were no issues. Not even the minor ones. It was great! It didn't last obviously but I seem to have another change. I recognize the usual aches and pains in the morning but now I seem to have discomfort later in the day and evening which I didn't seem to notice before. It's not really a pain but a ache/discomfortable feeling in my right hamstring and my upper arms. I have even had a few mornings where the pain was more noticeable for a time. I am frustrated as to what is going on! I have actually tried 6 mg a few times but am afraid to consistently do it because I don't want to be going backwards.
My dr wanted me to return to 10mg at my last visit the end of July because she says there should be no pain. I had just started 5mg at that time. I told her I did not want to go back up again and that the pain level was manageable. I haven't gone back up to 10mg yet and I hope I don't have to. My next visit is this week. (She does know I am at 5mg still.)
I have read here that some of you are doing the alternating between doses. Not sure what it's called. My dr has said nothing about it in any visit. I don't know that she has any long term plans of a tapering schedule. I'm not sure if there is a schedule guideline to follow. Is it a good thing to try?
Wondering what is going on and what to do has given me more anxiety and I feel so indecisive. I am the type of person that likes to know "the plan" I guess.

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Replies to "I have been tapering for about 6 months now. I started at 20mg and am working..."

You might be an exception. Most patients want to go back to a higher dose and it is their rheumatologist who doesn't want them to.

My rhematologist gave me some leeway to increase my dose when it was "absolutely necessary" but I needed to justify what was absolutely necessary. Now that I'm off prednisone, I think my rheumatologist gave me too much leeway.