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Any Tips For Tapering Off Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 5 9:44am | Replies (79)
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@jlo2252

@tapamil65
Hello and welcome to the PMR group!
I agree that this forum is a wealth of information and support.
I think Dadcue’s response in regards to “steroid-sparing” medications sound like the solution to yours and my problems with prednisone tapering. Right now I’m stuck at 7.5 mg, My rheumatologist wants to start me on Actemra. Although it is approved for people with GCA, it is now being used on patients who are having difficulties getting off prednisone and it seems to help these people.
Has your doctor ever discussed going on any other medications to get you off the prednisone?
Wishing you good luck on your PMR journey!

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Replies to "@tapamil65 Hello and welcome to the PMR group! I agree that this forum is a wealth..."
tapamil65 | @tapamil65 | Sep 4 1:14pm

I did go on actemra for 6 months. It did bring my sed rate down to 0 but the cancer doc I was going to for MGUS had an issue with the actemra so I went off it

The Actemra did work for me though as far as the PMR. So you should really look at it as a possible aid to getting off the prednisone

I am working on the slow weaning off prednisone at reducing 1 Meg a month. After reading all of the comments I may change the reduction to 1/2 when I get to 5 meg.

I have tried reducing by 1 Meg every 2 weeks and always have had reoccurrence. I was even at zero and had a huge flare and had to go back to 20

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