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DiscussionIs there somebody who is diagnosed with megavitamin b6 syndrome ?
Neuropathy | Last Active: Sep 2 12:54pm | Replies (18)Comment receiving replies
Replies to "Welcome @bettina123, There are a lot of members discussing vitamin B6. Here's a link that shows..."
About ten years ago I was diagnosed with PN due to slight sleepy feeling in finger tips, though the neurologist said also in my feet (not noticeable by me). He called it PN of idiopathic cause and said not to worry unless symptoms got worse.
About 1-1/2 years go, my primary care doc (who originally diagnosed PN and referred me to above neurologist) ran a bunch of blood tests and discovered B6 toxicity, which can cause PN. This 86 year old at the time had been taking a daily multi-vitamin for at least 50 years thinking it was good for me. In recent years, I had been taking Centrum Silver Men 50+ or similar daily vitamin. It has only 6 mg (353% DV) as Pyridoxine Hydrochloride, said to be a safe dosage in the above linked article. Within a month of stopping this vitamin supplement, my B6 toxicity was resolved, but the PN was still present.
Several months later, I became aware of the PN in my feet and over the following months increasing into the calves of my legs. I went to another neurologist who, after many tests, diagnosed CIDP and started me on a bi-weekly immunoglobulin infusions.
I have also developed "allergic" skin spots that do not change very fast, nor resolve very quickly and some seem permanent. The infusion nurse says it is apparently allergy to the immunoglobulin and said she would change the brand next time, even though the same medicine. I have scheduled an appointment with a dermatologist this Friday to see what he thinks can be done to resolve these spots on my upper chest and a few on my face. If anyone has any helpful thoughts, please share.