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@IndianaScott

Hello @kathymcl Nice to have you in the caregivers group here at Mayo Connect. I am sorry to read of your Mom’s journey.

Fast changes were always scary and frustrating for me. They are tough to navigate!

The repetitive aspects of caregiving can truly be exhausting. They certainly were for me. My wife would call my name hundreds of times a day. I almost changed my name 🙂

I always say there should have been an ‘employee manual’ given when I first heard my wife’s doctor calmly say ‘you’re a caregiver now’. It’s a challenging role to be thrust into for sure!

How do you recharge? I bet other caregivers here could use any tips and techniques you use!

Strength, courage, and peace!

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Replies to "Hello @kathymcl Nice to have you in the caregivers group here at Mayo Connect. I am..."

@IndianaScott thanks for your note back. Up until now, my only way to recharge was to come home from her senior’s residence and sit like a lump on the couch and have some quiet time. I used to do that in my final years of working after a tough day. He’d see my face coming in the door after work and tell me to go sit on the couch and he would take care of dinner. I retired 2 years ago at 67. Now I wonder how I would have managed the mom issue had I still been working. I don’t drive and am low-vision as a result of glaucoma. At that time, my mom lived in a senior’s residence a bus, 2 subways and a GO train away from me and it could take close to 2 hours to get to her. But we were able to find a place at the end of May, only a 23 min bus ride away from us so that is quite helpful, especially since I am there 3-4 days a week. She goes downstairs for meals but was having trouble remembering when to do that so we got her an ‘Alexa’ and set reminders for 1. Go to the nurses office now and get your medication, 2. Time to have your 1st (2nd,3rd,4th,5th) glass of water (as when she is dehydrated which is frequently, her thinking process seems to worsen), 3. go downstairs for your breakfast/lunch/dinner, 4. Goodnight, Rheta. I hope you had a good day. Sleep well - these types of things. And various other reminders to help keep her on track. Of course, she tries to have an actual conversation with Alexa which doesn’t work out too well but generally, she seems to get the hang of it. My husband insists that we take her out to lunch every 2nd Sunday so she gets to see him too which is great. These are some of the things we have put into place to help.