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Scleroderma/Systemic Sclerosis

Autoimmune Diseases | Last Active: Oct 12 10:36am | Replies (19)

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@kimberlyf

So I’ve actually been with no care for over a year and a half. 9 months at the rheumatologist who diagnosed me and put me on methotrexate and Cellcept and besides a chest X-ray and endoscopy did nothing else, even though he knew the X-ray showed pulmonary fibrosis and fluid in the lungs. I moved 7 months ago and have had no care My new pcp just continued the meds and I’m still trying to get to a rheumatologist as my condition worsens

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Replies to "So I’ve actually been with no care for over a year and a half. 9 months..."

@kimberlyf I suggest that you call the 2 organizations who keep lists of doctors who can help with ‘rare’ diseases and.or autoimmune diseases.
https://rarediseases.info.nih.gov/. GARD. Genetic and Rare Diseases organization
National Organization for Rare Diseases. NORD https://rarediseases.org/
Please check this out! How far might you be willing to travel if you find a good doctor?