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High anxiety regarding Reclast or Prolia decison for OP meds
Osteoporosis & Bone Health | Last Active: Sep 22, 2024 | Replies (165)Comment receiving replies
I have spent many hours researching and trying to educate myself regarding Prolia, Evenity and Reclast. Those hours spent are not entirely helpful. In fact I think I'm more confused.
My Dr's nurse finally replied to my online portal requests and assures me she will get back to me soon. I was short and sweet and stated I was not comfortable taking the Prolia > Evenity. So will shall see.
Anyway, now that I've spent 4 days researching Reclast and side effects - I'm shaking in response. Of course, we don't see many of the lesser or no side effects mentioned online. But the serious side effects that are talked about, really scare me. I'd like to get my thoughts straight before I speak with my Dr, but right now I can't do that.
One year of Prolia > Evenity. The Evenity may not blunt the rebound of Prolia. Reclast > ??? The Reclast scares me.
Replies to "I have spent many hours researching and trying to educate myself regarding Prolia, Evenity and Reclast...."
Hello- I did a good amount of research on this one as well. I choose Reclast. Only my one hip (-2.5) had crossed into Osteo. I have had 2 of the infusions. Each one was with hydration as well. My bloodwork prior indicated being a good candidate and my blood work prior to the second indicated that the medication is working. I also have had an oral exam prior to each insufsion. In terms of side effects, after the first infusion, the following day I was a bit "flu" like following. I just rested and nothing more developed. I did not have that reaction with the 2nd infusion. The only other "side effect" was in both infusions, my resting heart rate (which is generally low due to years of cardio) was lower. I was not tired or experience any other symptoms. I don't know you medical history of course but my experience thus far has been postive as was my friend's who directed me to the medical group that provided options and treated me. Ask your DR for all the details on each choice and decide from there. Once I read them all I chose Reclast. Best of luck
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@255anny I get the way research can send you in circles. I did the same thing with breast cancer but there were more answers there. Honestly, I often feel that research is not going to get us answers to a lot of our questions, and that our doctors can't answer them either- or they all have different opinions.
Someone posted a study that did show Evenity blunting Prolia rebound with very slight gain on the Evenity due to blunting after Prolia.
You could ask your doctor about doing 1-2 Prolias and then Reclast. McCormick has said rebound is gentler with just 1-2 shots, as I remember
I have friends who have done just fine on Reclast. I am not a good example because I did a low dose due to kidneys and afib but it has gone smoothly after brief fever.
I have found there comes a time to put the book down or close the computer and just pick a path. None of them are perfect and all of them will help. If you cannot tolerate a med, you can try something else!