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Any Tips For Tapering Off Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 5 9:44am | Replies (79)

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@jeansg

I had to slow my taper by alternating 3mg/2.5 mg every other day for a week and then go down for a week to 2.5mg. that regimen worked till I got down to 2.5 and pain increased. Splitting the dose helped me sleep better. I took a smaller dose at night than in the am (example 1mg night and 2mg in am)
Not sure about you all but I’ve also been on plaquanil/hydroxychloroquine at the same time as the prednisone. Recent labs showed a spike in platelet count and rheumatologist said that means it’s not working and he switched me to Imuran to see if that allowed the taper to works enough to get off the prednisone. We’ll see and I’ll let you all know.

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Replies to "I had to slow my taper by alternating 3mg/2.5 mg every other day for a week..."

It is amazing how “steroid sparing” medications are used to get people off prednisone. At some point doctors regard long term prednisone use to be the problem instead of PMR.

When people have side effects from the steroid sparing medication it gets stopped right away.

Prednisone side effects either are ignored or treated with another medication. It isn’t so easy to stop the prednisone.