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Bottom line .. have you finished Evenity and then fractured
After three spontaneous fractures in the past year, my doctor prescribed Evenity. Given my poor bone structure the doctors and physical therapists have recommended I be very conservative in my exercise routines and life in general.
Many of you have completed your Evenity regimes. Have you had new fractures since then?
Did you wait until after the complete treatment before you started doing more aggressive weight-bearing or bending?
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@gg63
Yes ... life is full of surprises. I can't imagine how frustrating it must have been to refracture after 8 months of Evenity. What a disappointment.
My OP diagnosis was actually a journey. After I fractured my femur in 5 places I asked the orthopedic surgeon why it fractured when the current DEXA scan was normal. He saw no osteoporosis in the Xrays either. He had no answer and suggested I make an appointment with a bone specialist. By the time I saw the specialist over 9 months later, I had broken a rib and suffered a very painful L2 vertebrae fracture. A new DEXA showed mild-moderate osteopenia.
The bone specialist diagnosed osteoporosis based on the 3 bone fractures with a 'false negative DEXA' scan. Apparently my bone quality is awful, even though my bone density is not that bad.
I am thankful I finally got the appointment with the bone specialist and the prescription for Evenity. Unfortunately, I will probably live with the results of that L2 fracture for years.
Since my DEXAs don't show osteoporosis, I am unsure how I can tell how effective Evenity will be. The bone specialist says the increased BMD is associated with increased bone strength, but there are no measurements that he can use to reassure me about my fracture risk.. (That's part of the reason I started this post to see how effective Evenity has been in reducing fractures in real people.)
I'm rooting for you too!!
Have any one of you had side effects from the Evenity? I have a hard time with medications. I took Fosamax and Boniva for 2 years and started loosing bone in my jaw. Also I started growing Cartlidge in my femur that could turn to cancer. So they made me stop. Now 15 years later I have -4.4 score in my spine and it hurts all the time. They want me to start Evenity. But I am worried will I have reactions like the other drugs? I go to Mayo Clinic in Phoenix/Scotsdale. It can cause heart issues and I have already been dealing with heart Afib and ablations for that. Just really want to hear how the rest of you are doing. I just turned 70 and was really enjoying my life until a year ago.
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1 Reaction@gma14fun
I have not had any side effects after 4 injections. But I also don't have any heart issues or auto immune issues either. And I did not have a negative reaction to Fosamax.
My bone specialist did send me for a cardio checkup though.
How do you feel after the injection?
@gma14fun I have afib and did Evenity and Tymlos w/out heart issues. I get the concern but studies on cardiovascular risk (ARCH and FRAME) showed no difference in cardiovascular risk between Evenity and placebo but small difference with alendronate which may be protective, according to the narrative of the study.
Do you know why your spine hurts? Do you have fractures? Osteoporosis does not cause pain, according to my doctors. I have a lot of pain from spinal fractures.
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1 Reaction@gma14fun
I feel tired. I don't view that as a negative since I get a good night's sleep. Lol.
Yes I have spinal fractures. I’ve lost an inch in the last year. My neck and back hurt with every move. I guess getting old isn’t the best fun. 🤩
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1 Reaction@gma14fun I wondered if you had fractures. I have 7 of them and stenosis in neck and lower spine so I get it. Yup getting old ain't for sissies, as they say!