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Vimpat - are memory issues transient?
Epilepsy & Seizures | Last Active: Sep 6 9:01am | Replies (53)Comment receiving replies
That’s quite a diagnosis. I have I have partial seizures with secondary generalizations, cryogenic. I am fortunate in that my seizures are often months apart. I had my first seizure at 38 in 1989. I spent 7 days in The Mayo Epilepsy Monitoring Unit in 2019. It was a 3-5 day program but I didn’t have a seizure. It was determined I have seizure activity across my whole brain so I was not a candidate for surgery. I am 73 and age makes all this emotionally so much more challenging. I have had the same neurologist at Mayo all these years. For that I am very grateful.
Replies to "That’s quite a diagnosis. I have I have partial seizures with secondary generalizations, cryogenic. I am..."
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@hillsboro
My seizures are mostly partial, simple and complex. I just had one secondarily tonic-clonic seizure experience in 2019 caused by an AED. I know how horrible this experience can be and I am very sorry for those who have grand mal seizures.
My sclerosis on my temporal lobe is quite a small one and I have a light epilepsy. This is why I have lived with epilepsy without knowing it for over 30 years, getting the diagnosis of it just in 2019, because it evolved and showed its face.
Temporal lobe epilepsy with sclerosis of any size is highly refractory and drug-resistant. This is why I could not adapt to AEDs and they did bring more harm than benefits. As I have learned, 1/3 of people with epilepsy are drug-resistant. Check if this applies to you.
If I were in your place, ask your doctor why you are not a candidate for Epidiolex. Unfortunately, I see still much resistance from doctors to prescribing medical cannabis, especially in the US. I believe there are many doctors who have not yet studied the endocannabinoid system which is present in every human body.
What I can say, I am very happy to be on this medication nowadays. My mother also takes it, she has Alzheimer's.
Have a nice day!
Chris (@santosha)