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What help is available for very slow motility?

Digestive Health | Last Active: Sep 22 3:09pm | Replies (51)

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@jlstjohn

What kind of surgery are you planning to have? The soap suds enema recipe I have been using is 500 ml distilled water with 1 Tbsp liquid castile soap. However, I just read another site that suggests 1 tsp per 1000 ml, seems like a big difference! I am going to lean towards the latter recipe going forward. How many days have I wished for x-ray capabilities at home (with a personal radiologist, too) to know what is going on in there!! I am close to 4 years post cecal volvulous/emergency surgery where 5 ft of my distal ileum and part of ascending colon were removed. But I have a long-standing history of constipation since my 20s (I am 48).

Didn’t know about the connection with hyperparathyroidism, thank you for sharing. Best wishes to you, hopefully surgery will happen and be a real solution.

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Replies to "What kind of surgery are you planning to have? The soap suds enema recipe I have..."

jlstjohn,
WOW that is a lot of intestinal removal. What caused the emergency? Blockage, tear, cancer, etc etc etc. I sure hope you feel better, but why couldn't they fix whatever is causing your lifelong 💩💩?
5 years of "trying treatments "(I hate being a Guinea pig).. I was sent to a GI, for an endoscopy, out of basically desperation. Surprise to everyone, I have Celiac disease, diagnosed at 50, of course I had been eating gluten my whole life. The damage to my small intestinal villi, is beyond repair, so I will always have malabsorption problems. In the trials leading to the celiac, I also had secondary Hyperparathyroidism, the importance of the glands is that they tightly regulate calcium levels. No one bothered to tell me that. High calcium is bad, low calcium is bad, who knew it could actually life threatening . Jump forward 20 years, accidentally my calcium levels have been trending upward for 10 years. I am giving you the short answer, now I am going to have some portions of the 4 parathyroid glands removed. It has nothing to do with thyroid. Too many years of elevated calcium, wreaks havoc on the smooth muscles in the body..guess which muscles are needed for successful 💩💩, I am praying, begging that it is successful and makes a HUGE IMPROVEMENT in so many other problems. I hope to get it done next month. I honestly don't know how I will handle it if this is not successful. I am just done fighting with my body and the doctors. 🤪🤪