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@elisabeth007

My poor father’s body was rigid “and fighting against all movement” Eldopa (sp???) helped my Dad enormously. i seek out the best trained practioners to prescribe for me. My body is too complex for a “lightly trained” medical generalist

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Replies to "My poor father’s body was rigid “and fighting against all movement” Eldopa (sp???) helped my Dad..."

I see a neurologist at Stanford University through what's referred to by the VA as community care. They are excellent; only problem is I no longer am able to drive and Stanford is about a 2-hour drive each way for me. After a thorough evaluation, the chief neurologist suggested I wear full-leg compression tights and compression socks in addition to wearing a back brace. I'm getting more protein in my diet--will be switching from vegan to eating eggs, some dairy (half cup of yogurt), and even adding meat to my diet: I'm having baked salmon tonight and I will be making chicken liver this weekend. As I stated, I'm just trying to maintain my mind and body. I use weighted utensils when eating--helps to keep me from splattering food all over the place due to tremors and dyskinesia. I attend a beginning tai chi chuan class which I use to focus on grounding/rooting techniques--confident movement begins with your feet. There's a formal dance class after tai chi chuan, and the teacher has a strong foundation in what I'm trying to focus on. So, for me, diet and exercise, and plenty of sleep--began using a CPAP machine for sleep apnea, but it also helped with my sleep hygiene. Good neurologists are rare and often quite expensive (had to pay $350/session with a highly respected local neurologist, but Agent Orange exposure and drinking toxic water a Camp Lejeune is most likely how I contracted PD, so the government owes me decent medical attention. And although I've been back in the U.S. for nearly five years, I've been denied my claim for PD; guess the government is waiting for me to die first. I've read about recent scandals regarding the VA, and may end up just another statistic. As far as rigidity and body coordination go, I had to learn how to walk and move better which took several years of physical therapy. I can now walk naturally, tai chi helped with my posture, and strengthening exercises gave me back the ability to get in and out of cars and bed; even had to build up my body to get out of a chair. There are many online support groups such as SPEAK OUT Therapy Program--They'll send you free books for your father to follow along with the online group < ParkinsonVoiceProject.org>. They helped me to build up my esophagus to keep me from choking on food and speaking clearly--boosted my confidence. I practiced Speaking Out with Having difficulty talking was keeping me from attending social activities such as the water aerobic class I take twice a week at a local spa (free, thanks to a Multiple Sclerosis/PD non-profit group where I live in Monterey, CA. It's been a challenge, but I trust the physical therapists more than I do all the doctors I've seen. I hope your dad's condition improves, but it's going to take a lot of work and outside support. He's fortunate to have you in his corner. My wife is the one who keeps me going even when major depression sets in.