← Return to Introductions: Are you caring for someone with dementia?

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@cathyb

Hi minina.. I am new here and not sure you will get this but my husband was diagnosed with behavioral variant Frontal temporal dementia in 2013 and passed away in 2017. He was 63. I went through SO much partly because he was so young. I am writing this because you can make it through this awful decease. I mananaged to take care of myself and him as well caring for him at home until the last few months.

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Replies to "Hi minina.. I am new here and not sure you will get this but my husband..."

Hi @cathyb Nice to e-meet you here! I am glad you joined in Mayo Connect and especially the Caregiving discussions. I am sorry to read of your husband's journey with dementia, but am thankful you reached out here! The isolation of caregiving is so typical and can be so incredibly overwhelming -- at least it was for me that is for sure! I found Connect exactly because I was looking for folks who had other caregiving experiences so I could have some comradery during a time when my life was consumed with caregiving. I also understand a bit about your age comment in that my wife was stricken with her disease when she was 49.

It is so wonderful that caregivers share so that other caregivers know they are not alone and at times the sharing of ideas, tricks, hints, and anyting that worked can be a true godsend.

Was there anything specific that helped you through the tougher times that you might want to share here to help others?

Strength, courage, and peace!

Welcome @cathyb. I'm so pleased that you joined the discussion to help others. I think you might also enjoy reading and responding to some special discussions that Scott wrote. For example:
- May Thoughts from a Caregiver... https://connect.mayoclinic.org/discussion/may-thoughts-from-a-caregiver/
- Love and Caregiving... https://connect.mayoclinic.org/discussion/love-and-caregiving/
- Loss and Grief in Caregiving https://connect.mayoclinic.org/discussion/loss-and-grief-in-caregiving/