Connect
← Return to Introductions: Are you caring for someone with dementia?
Discussion
Introductions: Are you caring for someone with dementia?
Caregivers: Dementia | Last Active: Mar 17 6:30pm | Replies (762)Comment receiving replies
Hi @daisy2011 - I'm Debbra. My husband was diagnosed with Mild Cognitive Impairment, which seems to be progressing toward dementia. I totally relate to your loneliness. For me, the erosion in emotional connection is the hardest part. My heart is going out to you. Stay here on Connect. it's a great antidote to lonely evenings! Is there anything you do to be less lonely? Visit with friends? Call family? I'd love to hear what helps for you. For me it's calling two friends: one to keep my husband company and one to keep ME company - separately!
Replies to "Hi @daisy2011 - I'm Debbra. My husband was diagnosed with Mild Cognitive Impairment, which seems to..."
@debbraw
I have heard from many friends who say the loneliness was such a difficult part of this disease. One friend said that she and her husband (he has dementia) now eat in front of the TV since they cannot have their usual dinner conversations. I suppose it is all a matter of continued adjustment to the changes but yet you have the memories of what used-to-be.
@debbraw what a great idea! Calling 2 friends. I shall try it. Althought husband has aphasia, can't talk well. We shal see.
It's hard for me, especially at night, to be alone. My wife has lived in a memory care facility since July. I can take care of all my physical and environmental needs, but the absence of human companionship, even if it's not very high quality, is hard. I am shy by nature, and have a hard time reaching out to people. My wife and I moved into a large condominium building about 2 1/2 years ago, and her condition kept me busy with her almost constantly. I have made some friends here, but they party a little harder than I can tolerate physically, although they're nice people and want to include me. I don't have children, and sometimes feel that my life has lost a sense of purpose, although I do a lot of volunteering in the community. I guess I should try to engage with my imperfect friends and in activities that I'm not very interested in, like going to church, just to be around people more often. Any other suggestions? I am close with three sisters and stay in touch with them via Zoom, phone, and texting, but they also have their own lives.
Connect
Hi Deborah
Thanks ir your lovely words. It's not easy that's for sure.
Take care