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Introductions: Are you caring for someone with dementia?
Caregivers: Dementia | Last Active: Mar 17 6:30pm | Replies (762)Comment receiving replies
Hi again, @daisy2011 Yes, I agree, this disease can be very isolating to caregivers. It is what actually brought me to Mayo Connect in the first place. I found it a great way to be at home and yet reach out into the entire world and break that isolation. Or at least break it a bit! It is very hard when our loved one isn't communicating much anymore for sure. I know it was very hard in my case just as you describe!
Don't forget many of us are here and happy to visit, answer questions, and simply chat! it can be a great escape while still being right there for your loved one!
Strength, courage, and peace!
Replies to "Hi again, @daisy2011 Yes, I agree, this disease can be very isolating to caregivers. It is..."
@IndianaScott . Isolating very true! That is how we are at this point. I cannot understand when my husband tries to speak. Frustrating for him as well. No help ffrom physicians, etc; just patience and praying to be able to figure it out. Just found out that Primary Progressive Aphasia is a rare disease when not caused by stroke. At my wits end. So depressed, getting therapy....and praying for strength to get through each day. Thanks for your thoughts.
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