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@daisy2011

Hi There
As this disease progresses I n getting very lonely. My husband doesn't talk very much
Thanks for your support

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Replies to "Hi There As this disease progresses I n getting very lonely. My husband doesn't talk very..."

Sorry I can not follow the thread but just wanted to ssy that I witnessed improvement with the use of medicated patches - maybe you are doing this already. It is a tough journey but sometimes there is a glimmer of light. All the best I am only an sssistsnt caregiver and the patient is 90 years old and in stage 7 - the impact in her grown children is devastating

Hi again, @daisy2011 Yes, I agree, this disease can be very isolating to caregivers. It is what actually brought me to Mayo Connect in the first place. I found it a great way to be at home and yet reach out into the entire world and break that isolation. Or at least break it a bit! It is very hard when our loved one isn't communicating much anymore for sure. I know it was very hard in my case just as you describe!

Don't forget many of us are here and happy to visit, answer questions, and simply chat! it can be a great escape while still being right there for your loved one!

Strength, courage, and peace!

Hi @daisy2011 - I'm Debbra. My husband was diagnosed with Mild Cognitive Impairment, which seems to be progressing toward dementia. I totally relate to your loneliness. For me, the erosion in emotional connection is the hardest part. My heart is going out to you. Stay here on Connect. it's a great antidote to lonely evenings! Is there anything you do to be less lonely? Visit with friends? Call family? I'd love to hear what helps for you. For me it's calling two friends: one to keep my husband company and one to keep ME company - separately!