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Does anyone else have chronic rectal tenesmus?

Digestive Health | Last Active: 7 hours ago | Replies (32)

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Thank you so much for the additional information.
I’ve been working with a major teaching hospital in Northern California for 3 years, and feel like I’ve gotten excellent treatment. Fortunately, they haven’t given up on me, and continue to try novel treatments, in hopes of finding something helpful. So far, no luck.
I wish I would hear from someone with the same symptoms, or history of symptoms. I can’t be the only one…

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Replies to "Thank you so much for the additional information. I’ve been working with a major teaching hospital..."

@mmalone1804 My wife is suffering from those same symptoms, she describes it a intense downward dpressure she thinks it is at the top of her rectum or bottom of here sigmoind colon . She had had decades of constipation that has gotten worse over time, and the pressure has been really increasing over th past year and it is now starting to affect her mental and emotional health.
She has constipation and diagnosed with several things.. slow transit, rectal hypersensitivity, dyssergenic defecation to name a couple. But the Doctors only focus on the constipation and seem to ignore that feeling of pressure like she has to go.
The only treatment any Dr has ever offered was pelvic floor physical therapy which she tried but it did not help. the neuro-GI referred her to a surgeon. the surgeon said he recommended a colectomy (to completely remove the large intestine) and an illeostomy. And those would take care of her severe constipation. But he couldnt say whether or not it would help the downward pressure.!
mmalone, where do you feel the pressure, (But no Dr has looked into it to see exactly where it is located) We have looked for a Dr. that focuses on this type of problem, but have been unable to find one at Johns Hopkins and Mercy Hospital in Baltimore (University of Maryland Hospital in Baltimore does not have a motility clinic at this time)
Now she is taking half a bottle of Mirilax every 3 days, but the pressure returns in just a few hours after completing the Mirilax cleanout.
what kind of treatments have thy been giving you in California?