← Return to GFR down from 58 to 43.8 over 3 years

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GFR down from 58 to 43.8 over 3 years

Kidney & Bladder | Last Active: Sep 1 3:28pm | Replies (31)

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@cheyne

Hi,
My dysautonomia was initially caused when I cheated death from campylobacter and my kidneys shutting down, they gave me hours to live as they couldn't determine what I had at the time. No typical signs associated with campylobacter just rampant diarrhea, no pain or vomiting and still felt pretty good other than couldn't summons the strength to walk but a few paces. With that reality I took myself in to ED after a week of it.
It has been further complicated by unchecked continual high glucose levels and blood pressure ever since. So no, all the major symptoms I have are the result of dysautonomia. The only symptom directly related to diabetes is the lack of sensation in both arms and legs. No pain or pins and needles, no loss of sight compared to prior eye sight tests.
Dysautonomia affects my bowel, bladder, digestion, blood pressure, eyes changing with the available light level, stability in standing and walking, throat and the ability to breath, brain fade, vertigo and severely compromises my ability to understand the spoken and written words, it destroys my memory when I'm having a really bad day and I lose the words that were on the tip of my tongue. Basically I feel like an idiot in these moments and start slurring my words.
Against that every other health issue I have doesn't come close to being the insurmountable problem of having dysautonomia. I got through 15 TIA's over 3 days early this year without any residual effects, so in some respects I have been pretty lucky.
But the dysautonomia is ripping through me destroying any semblance of what used to be normal. Touch wood it has only interfered with the heart beat once, I have an enlarged heart and am otherwise lucky to have a very healthy heart. I hope it is enough to keep it pumping when dysautonomia tries to stop it beating. So far my lungs are free of trouble and there is no loss of sexual performance, yet. Three of the symptoms not affecting me but the dysautonomia is progressing and interfering more as time goes by, that could be the influence of diabetes, I don't know. However it is likely that the dysautonomia will cause death before anything else has a chance at it.
I'm not belittling the severity of other health issues, they are every bit as important, just not for me.
Cheers

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Replies to "Hi, My dysautonomia was initially caused when I cheated death from campylobacter and my kidneys shutting..."

A family member had dysautonomia, so just want to make clear that I know what it is.

It may loom large but for general health there may be other issues that can be addressed to at least mitigate the situation.

Blood sugars can be controlled. High blood sugars have a huge effect on the body and mind (including enlarging the heart, which is also serious). I hope you have a diabetes doctor who can help with control either through meds, insulin and/or technology. Before the pump we did finger stick blood tests 17 times/day. Now there is pump, CGM and phone linkage possible.