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@donnamac

Oh I had my say and my departure. My cardiologist was angry because I had a heart monitor patch for a week prescribed by Johns Hopkins Hospital University, trial division. He wouldn't even see me, he sent his PA. She is the one who said she never heard of anything called "long Covid, or Long Haul Covid." I told them, I won't be back and will never give good reviews about any in that practice.

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Replies to "Oh I had my say and my departure. My cardiologist was angry because I had a..."

Ms. Mac, if you are located in the region of Johns Hopkins (main campus or any of its satellite locations around Baltimore), you may want to consider getting a referral to the Hopkins long COVID clinic (PACT). Since the clinicians from whom you have sought help have brushed you off (which shocks the conscious, really (I have myself experienced the brush-off multiple times already, usually from ENT specialists)), possibly you can get situated with a new primary care provider. The primary care doctors in the Hopkins network are overstretched these days, but I´ve had good experiences with several of the PAs attached to internal medicine PCPs. Do you use MyChart? If so, you should be able to schedule with a new PCP (likely initially to be a PA or CNP) at one of the Hopkins locations simply by using the scheduling system inside MyChart. You have probably used this system, and if so, you know that it will generate open appt. listings arranged by date. I see no reason you cannot see a sequence of PCPs, over time, until such time as one of them hears you out and considers making a referral to PACT. Hereś a link to PACT:
https://www.hopkinsmedicine.org/coronavirus/pact. Originally, PACT seemed to specialize in cases involving long COVID after hospitalization, but its criteria now seem more expansive.

I went to a cardiologist a few months ago for rapid heart beats…he ran numerous tests and couldn’t find anything wrong with my heart except it’s beating too fast…well I already knew that since I’ve been dealing with this for almost two years now…he seemed to wait for me to respond to what he said and I did, I told him it started after having covid and he was quiet for a moment and he asked me if I had a problem with telling my doctor to refer me to a psychiatrist, so much for getting in with a specialist that took months for me to see…honestly if it wasn’t for the good people here sharing the same symptoms I have, I think I’d be thinking I’m going crazy.