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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 hours ago | Replies (582)
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@marylou329

Hi Lori,
Thank you for reaching out. There was a date change due to the Labor Day Holiday. My new arrival date is Sept. 4th with my stem cells on Friday the 13th. I'm getting antsy, but I'm keeping busy trying to get everything organized. It can be overwhelming moving for a month or so. I also have a special needs daughter that I have to get things in place for as well. Like they say it's a " Marathon not a Sprint."

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Replies to "Hi Lori, Thank you for reaching out. There was a date change due to the Labor..."
Lori, Volunteer Mentor | @loribmt | Aug 26 11:39am

Oh goodness, you have a lot on your plate right now trying to get everything lined up for this transplant. I can’t remember if I posted information for you about what to pack long term and also some resources for what to expect during transplant.

The first is from Mayo. It’s divided into sections. Of course this is for patients having a transplant at Mayo, but most hospitals follow similar guidelines. There are a few differences but the basic information is there:
https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/transplant-journey/#ch-tab-navigation
This from Memorial Sloan Kettering:
https://www.mskcc.org/pdf/cancer-care/patient-education/leaving-hospital-after-your-allogeneic-transplant
This link is to a good discussion on what else to pack for long term stay: https://connect.mayoclinic.org/comment/703859/

Will you be in the hospital for the month stay or did you need to find lodging off site?

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Lori, Volunteer Mentor | @loribmt | Sep 17 8:23am

Good morning, @marylou329 Well? How are you doing with your new stem cells? I know there’d been some changes to your schedule and a few logistics to juggle, but if all went as planned then you’re at Day +4…the other side of transplant.
When you’re feeling up to it, I’d love to get an update on your progress. Were you able to make arrangements for your daughter to be ok in your absence?

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