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Has anyone lost weight on Lupron and Letrozole?

Posted by claudiaovando1 @claudiaovando1, Aug 24 5:20pm

I started in Lupron back in June and I noticed my apetite increased, but as soon as I started Letrozole my apetite changed. I still eat normal, but I feel like I have to constantly eat in order for me to gain a pound. I started working out everyday because of the bone pain and that helps when I take calcium, magnesium and work out. I still feel some discomfort when I seat for too long in my hips in specific. What has been your experience with this medication?

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Mentor
Miriam, Volunteer Mentor | @mir123 | Aug 25 7:40pm

Just to understand--you need to gain weight but are finding that it is difficult while taking Letrozole? I gather it can decrease appetite in some people but that others gain weight while on it. I'm not totally sure what your concern is--fill me in if you feel like it.
I've been on letrozole for 21 months with no discernible side effects, although I need to have my bone density checked. I have lost some weight in that time but due to other things--probably a combo of stress and increased exercise. My weight is in normal range. And no one looking at me would worry, as I'm still pretty round!

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claudiaovando1 | @claudiaovando1 | Aug 25 8:08pm
In reply to @mir123 "Just to understand--you need to gain weight but are finding that it is difficult while taking..." + (show)
@mir123

Just to understand--you need to gain weight but are finding that it is difficult while taking Letrozole? I gather it can decrease appetite in some people but that others gain weight while on it. I'm not totally sure what your concern is--fill me in if you feel like it.
I've been on letrozole for 21 months with no discernible side effects, although I need to have my bone density checked. I have lost some weight in that time but due to other things--probably a combo of stress and increased exercise. My weight is in normal range. And no one looking at me would worry, as I'm still pretty round!

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Yes. That's my concern the fact that I am having a hard time gaining weight. I started both Letrozole and Lupron 2 months ago. When I was first diagnosed back in March. I was afraid to eat anything and also got depressed so I lost 10 lbs. Now after my lumpectomy, radiation and I am trying to gain back what I lost and I am finding it hard to get it back. Maybe because I cut all added sugar? I don't know. I am afraid my body is doing something else I don't know about? It just makes me nervous

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Mentor
Miriam, Volunteer Mentor | @mir123 | Aug 26 9:28am
In reply to @claudiaovando1 "Yes. That's my concern the fact that I am having a hard time gaining weight. I..." + (show)
@claudiaovando1

Yes. That's my concern the fact that I am having a hard time gaining weight. I started both Letrozole and Lupron 2 months ago. When I was first diagnosed back in March. I was afraid to eat anything and also got depressed so I lost 10 lbs. Now after my lumpectomy, radiation and I am trying to gain back what I lost and I am finding it hard to get it back. Maybe because I cut all added sugar? I don't know. I am afraid my body is doing something else I don't know about? It just makes me nervous

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I certainly understand being nervous. Assuming your oncologist is monitoring you and isn't concerned you might consider talking to a nutritionist. That might really help with how and what to eat. I'm guessing eating a bit more frequently and something nutrition packed--like smoothies with protein--could be good. My sister who had breast cancer over ten years ago still sees her nutritionist from time to time and really feels it has helped her--emotionally, too. Wishing you all the best.

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