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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 2 hours ago | Replies (202)

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@mkoch

Citychica: You are the age of my youngest daughter who insisted I go see Dr. Philip Theodosopoulos at UCSF after 3 other doctors told me my meningioma was not in a location any neurosurgeon would chance to operate.
(My Ear, Nose, & Throat doctor-I was having sinus issues from my meningioma--a neurologist, and a radiation oncologist, who specializes in radiating meningiomas and malignant tumors--all said not doable.) There seem to be some similarities between your location and mine..."lesion along the left middle cranial fossa abutting the left cavernous sinus and left foramen rotundum." Before you give up hope think about consulting with Dr. Theo.
If you have your scans sent to UCSF you can have a video visit with him. That is what I did. I had an hour video visit with him and met him a week later just prior to my surgery. If you're interested I'll give you the number of his scheduler who would explain to you how to send your scans, etc. My heart goes out to you for having to deal with this at such a young age and with 3 children. As I'm sure you've read on my posts before, UCSF is rated #2 in the United States for neurology.

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Replies to "Citychica: You are the age of my youngest daughter who insisted I go see Dr. Philip..."

Yes. I’d love the his number. I definitely also like the idea of a video visit.