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GCA without temporal involvement

Polymyalgia Rheumatica (PMR) | Last Active: Aug 26 10:31am | Replies (10)
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@kkmpk123

I was diagnosed with Polymalagia rheumatica PMR and Giant Cell arteritis GCR
My blood was ok it indicated elevated inflammation and infection markers she started me on weaning off of prednisolone I am down to 15mg from 30mg. She is prepping me for immunesuppressant Actemra
I would appreciate any input

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Replies to "I was diagnosed with Polymalagia rheumatica PMR and Giant Cell arteritis GCR My blood was ok..."
John, Volunteer Mentor | @johnbishop | Aug 25 1:05pm

Welcome @kkmpk123, There are quite a few discussions on Actemra that you might find helpful. Here's a list of the discussions and comments by other members - https://connect.mayoclinic.org/search/discussions/?search=actemra%20for%20pmr.

It good to hear you have tapered down to 15 mg prednisolone. How long ago were you diagnosed?

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kerriihart | @kerriihart | Aug 25 4:28pm

I was on Actemra for my GCA. But, PMR predisposes GCA. I wasn’t getting the relief I needed for my PMR so my Doctor switched me to Kevzara injections along with 10 my pd if prednisone. Kevzara is specifically formulated for PMR.

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maryo1952 | @maryo1952 | Aug 26 10:31am

I was diagnosed with PMR & GCA in May 2022 at Mayo Clinic. My then rheumatologist put me on 40 mg prednisone & I started Actemra infusion every 4 weeks. I was weaned off prednisone completely by late September 2022. After more than 2 years on Actemra I am finally weaning off the infusions & will start spreading to 6 weeks. Hopefully I can keep my sed & crt rates normal. I have never had any kind of noticeable side effects from the Actemra. I’m really happy to be getting off Actemra though, it’s very expensive until you meet your deductible, but glad to not have that medication pumped into my body.

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