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Off Prednisone but Residual Stiffness
Polymyalgia Rheumatica (PMR) | Last Active: Aug 27 7:15am | Replies (37)Comment receiving replies
@dadcue
Really, I agree, what a amazing result with the actemra!!
Gives me hope for my future!
Just a footnote here:
I went to Universal studios in Hollywood for my grandsons 10th birthday and actually walked around the hilly terrain for about 8 hours—I was really pushing myself. My husband is worse off so he used our scooter! Even though I had pain, I was proud of myself🥲🙂!!! I did prepare ahead and took an extra 5 mg of prednisone when I first started out and of course brought my pain medication with me which I took on schedule. And a good time was had by all….
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@tuckerp
Update to my universal studios trek::
Ok , I did have some hip and leg muscle pain for a couple of days! But normal for anyone who does more than their usual activities, lol. When we got home we were exhausted and I did have a nice long rest! 🙂. The fatigue was worse than the muscle soreness but totally worth it!