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Newly diagnosed with Neuropathy - Advice?

Neuropathy | Last Active: Sep 12 8:15am | Replies (49)

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Hi Janet- you’ll notice many members have mentioned dealing with balance issues. These early days are a really good time to think about all you can do at home to prevent falls, which can lead to drastic consequences.
Big and little changes- up with the throw rugs, install grab bars in the shower/tub area, install higher toilets, rearrange furniture so there are no wide expanses to travel without something to lightly touch if needed. I switched sides of the bed I sleep on as the other is a straight route to the bathroom, I put anti-skid socks on before I get out of bed, I changed how I go up and down steps by moving to one side for touch balance and always use a rail if one is there. I don’t hurry anywhere or anytime- my neuropathy leg will cause the toes to “catch” and down I’ll go. When I walk, it’s always top-of-mind to keep good form- “exaggerated heel strike “.
I take my cell phone everywhere in or out of the house just in case. After a bad fall while walking, at my brother’s urging, I got a “smart watch”. It will register a fall, printing on the phone face will ask if you need help, you tap yes and it calls the number you have pre-entered (nearby relative or friend), if no connection, it calls 911 and gives your location coordinates.
I find the hardest thing about neuropathy is accepting that this is your new life, there is no going back to what you could physically do before, but with courage, resiliency, and determination, a good life is there to enjoy.

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Replies to "Hi Janet- you’ll notice many members have mentioned dealing with balance issues. These early days are..."

Thank you for your very detailed, and helpful information about how to prepare for balance issues. So many good suggestions, and there are definitely ones I hadn’t thought of. Hopefully that will be in the future for me, but as you say, it’s not too early to be thinking about safety and quality of life issues.

What an excellent list of suggestions ! I've had painful PN for about 12 years and it's taken me that long to discover many of the things on your list. I've aways been an active person so the last sentence really resonated with me. Thank you!