Hi,
I'm under a good Gastrologist and have been for some years. We have tried all manner of medication with little or no success.
As it stands the major problem is Autonomic polyneuropathy to be more specific, which is the 2 main nervous systems being affected. Being Dysautonomia means a lot of the minor symptoms are random and intermittent and very difficult to see/diagnose. I have arrived at the point where the message from the brain to contract the required muscles to empty the bowels rarely gets through and the same for the bladder, it takes twice as long to digest the stomach contents as my wife does after the same meal all be it, a fraction of what she eats. I have very little control but fortunately I am not incontinent with it. I get the urge to do something and the message is clear, but the required reaction is missing in action.
I'm on the last BP medication know and am reacting to it as well. Fortunately I'm able to push past the effects as the alternative is the severe migraine. My back stop is codeine which I use sparingly if at all. My BP is out of control with readings from 137/84 to 197/114 this morning, it can change that much through the day. It is not unusual for me to see 240/120. Just such an incident sent me to ED 2 months ago for 8 hours with no let up. It was at this time the Dysautonomia/Autonomic polyneuropathy was discovered.
The worst I have ever been is paralyzed from the waist down unable to move or step for several minutes, left standing looking at my feet wishing they would do something, but no, not happening. I go through periods when I can only move about with walking sticks to the now very rare occasion when the Dysautonomia decides to take a break for an hour or three. On such a rare occasion I get stuck in and do everything I can before my normality returns. I'm lucky in that there so far is no real pain or numbness to the body just no tactile sense, but then I can and do suck up a lot of pain in preference to painkillers. My only task is to get through every day as best I can, hoping for something better to happen, or the miracle cure we all seek.
Cheers