32 Years old with Osteoporosis

Posted by sunshine07 @sunshine07, Aug 24 1:07pm

Hi Everyone!

I'm 32 Years old, Female and I was Diagnosed with osteoporosis (-2.5) a couple of weeks ago. I have 3 compression fractures in my spine after I fell while fainted. Have no Idea why I fainted, (docs are trying to figure this out but they have no clue).

This came out of nowhere. I live a very Healthy and active lifestyle.
endo was doing so many labs, all looks normal and still don't know what possibly caused that in my age.

Is anyone In a similar situation?

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Welcome @sunshine07, Sorry to hear you have been diagnosed with osteoporosis at such a young age. You might find the following discussion helpful.
-- Young woman diagnosed with osteoporosis: https://connect.mayoclinic.org/discussion/young-woman-diagnosed-with-osteoporosis/

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@sunshine07 I first fractured from a traumatic fall in 2006, when my DEXA was -2.6 in spine. I actually tried to to get on meds but didn't succeed until 2021. With fractures you probably qualify for anabolic bone building meds. Tymlos, in my experience, helps with healing and Forteo apparently does too. You are borderline! Do doctors think your fall was due to osteoporosis? Do you have a TBS test that shows bone quality? It may not matter since fractures increase our risk even if bone density were to be deemed okay.

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Doctors Thinks something else caused me having osteoporosis at my age. The fall was due to fainting, I Just fell to to the floor.
TBS test wasn't done, Now I think I should probably do it. I did the DEXA that shows -2.5 in my spine.
I also lost an inch form my height.

endo thinks that Forteo or any other bone building meds may affect fertility and I want to have kids in the near future. I'm Just really confused with what to do next as far as treatment.

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@sunshine07

Doctors Thinks something else caused me having osteoporosis at my age. The fall was due to fainting, I Just fell to to the floor.
TBS test wasn't done, Now I think I should probably do it. I did the DEXA that shows -2.5 in my spine.
I also lost an inch form my height.

endo thinks that Forteo or any other bone building meds may affect fertility and I want to have kids in the near future. I'm Just really confused with what to do next as far as treatment.

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Actually I just looked at the results again, I did the TBS it's 1.268

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Hi @sunshine07 I am very sorry to hear that you have osteoporosis at this very young age. Not trying to overwhelm you - this link is an article for an overview on osteoporosis. If you scroll down to table 1, you will see a list for secondary causes of osteoporosis. It is great that you are working with your endo to figure out the cause of your low bone density. Hope this article is helpful.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5335887/
Best wishes.

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Thank you, I appreciate you sharing the link.

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@sunshine07

Thank you, I appreciate you sharing the link.

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For normative data of TBS values we used the cutoff points recommended in the literature (12): TBS >1.350 is normal; TBS between 1.200 and 1.350 is indicative of partially degraded microarchitecture; and TBS< 1.200 equals degraded microarchitecture.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6516507/
@sunshine07 So the microarchitecture of your bones is "partially degraded." The question is why. Do you have hormonal issues? Has your parathyroid been tested? Kidneys? Do you take steroids? Etc.

As for fertility:
https://www.drugs.com/tips/forteo-patient-tips#:~:text=1.%20Forteo%20is%20injected
There are no controlled studies in pregnant women to determine the harms of taking Forteo during pregnancy but animal studies have shown increased skeletal deviations and variations at 6 times the human dose. Avoid during pregnancy. Encourage women of childbearing potential to use an effective contraceptive during treatment with Forteo

So it isn't that Forteo or Tymlos (I am not researching Evenity but probably the same) affect fertilitiy. It's that you cannot have a surprise pregnancy because they will affect a fetus. This is true of many drugs. Doctors are reluctant to prescribe for child bearing years. If you are on reliable birth control the MD might prescribe it.

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