Hi,
AKD is accidental kidney damage which becomes CKD when they don't bounce back to "normal".
For some unknown reason I react to all oral BP and T2 meds and have gone on to insulin, antibiotics have to be injected now. Because of the Dysautonomia and the refusal to script me with fast acting insulin I still get highs and lows. I believe with the kidneys, uncontrollable BP and Dysautonomia my glucose levels are being interfered with. With readings in the range of 4.5 to 7 normally I can suddenly drop to below 4 for no known reason. Fortunately that I can deal to, but with glucose tablets they take 3 hours to start working, not the 15 minutes they are supposed to. The sudden spikes of around 20 I have nothing that can help but hope in time it will return to "normal", for me. If I eat one small "normal" meal the glucose level goes berserk. I now live on 4 slices of wholemeal bread with plastic butter and a slice of shaved ham per day mixed in with 6 cups of tea. Yes, not ideal but what the stomach tolerates best. Of a weekend I will try to stomach a small plate of vegetables and some chicken. If I eat more than that with the slow digestion from Dysautonomia I end up with SIBO. It is a delicate balance to stay out of SIBO. I have just recovered from the last bout and now I'm back to stomach acid backing up into the mouth and stripping the lips. I do best when not eating, just my good old cup of tea. Now with the revelation that Dysautonomia is present it kind of starts to make sense to me. A great pity they never looked at it 12 years ago when it all kick off.
To date there is no cure and no form of help, so each day I learn a little more of what I can do or not to work with this disease.
Cheers