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Slight PSA rise 9 months after radiation.
Prostate Cancer | Last Active: Aug 28 12:13pm | Replies (55)Comment receiving replies
reading all this makes me want to add a little. I just finished 2 years of lupron ( with some casodex) in the onset. Maybe 3/4 months of appaliutimide and 39 radiations. The Psa has been undetctable for about 2 years , counting from the begginnig of treatment until now. I could not handle the erleada , it wasa toxic to me and I had to stop. The radiation had a flaw the radiologist was old school and he got to the end and ran out of ability to finnish the treatment. He did a very good job, the odd part was due to his inability to be certain of the final passes. I spoke to the MAYO Clinic, and got on the radiology patient roster incase something cooks off again. ai sent all the initial PSMA scans and the rest. They were not terrible concerned, it has been 6 months since and lupron, they want me to take a Psa reading every 3 months .Makes sense to me, so far I have had 2 3 months cycles and things are still undetectable. Testoserone is barely there. About .23 and not much it happenins there. Over all the idea is that , I being 77 years old, and considering the length of lupron it is unlikely I will recover much testoserone. I really don't miss it. I workout daily, stationary bikes etc and some weight bearing . So, the truth is I could care less about testoserone. I have regained a lot of strength. And from what I experienced so far, I never stopped the workouts throughout the treatment even thru the radiation. That part was rough. Lupron is a heavy hit. Ths last converstaion with my NP, she nenbtioned regarding testoeerone . you will eventually have a " new normal '. in other words an unknown. Have also been mentioned age will slow down or completly prevent any more . The Mayo clinic said any more may take two years I have no interst in sex, it has always been a pia all I want to do is continue exercise. The opinion from Mayo Clinic was that the initial radiaton was done very well, he was operating inder the guideline of ' curative 'methods, which I understand to be high level of radiation. '. that is my story so far . If and when the psa moves to a 2 they will have me got to the Rochester clinic and get the missing link rezapped or whatever. What else can I do .
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Keep exercising. You have the right idea it works.
I’ve been on Lupron for seven years and it did give me a lot of hot flashes. I didn’t realize how much it had deteriorated my muscles until I recently had my knee replaced. I had one done five years ago, and I quickly recovered within two months. I had my second one done in March and it has taken me almost 4 months to be able to really walk comfortably. My muscles were just too weak to recover quickly and I had to do PT for four months just to get my muscles up to the point where I could walk without a limp. I now go to the gym three times a week and use exercise machines on my legs and arms. I really can’t use weights because I’ve got tendon tears in my left shoulder and even lifting 15 pounds is too much.
I got a lot of muscles back doing all the PT, it’s really beneficial.
I also walk a mile twice a day on a track across the street from my house. That doesn’t help enough, you need to do weight training.
As for testosterone, it comes back really slowly when you’re in your late 70s. My brother had radiation last year in January and was on Lupron for six months. He was still getting hot flashes nine months after stopping the Lupron. His testosterone is still only in the mid 100s. I hear a lot of people complaining about their testosterone not coming back in the weekly prostate cancer meetings I attend. It’s really tough on those in their 70s and above. With Casodex The testosterone is supposed to come back a lot quicker, but it’s not really working well for those that are older either.