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Lung Matters Protocol

MAC & Bronchiectasis | Last Active: Sep 7 4:51pm | Replies (52)

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@sueinmn

When I wash my pieces, if I am going to boil them immediately, I don't worry about covering them with solution. In fact, I often put them in a small storage container and shake them vigorously. I use original Dawn, purchased in giant bottles at WalMart or sometimes Costco, because that is what Dr Joe and his team tested. I doubt any color or scent survive 10 minutes of boiling. I am old-school, using a saucepan and timer as my kitchen has no room for more "stuff" and they are available no matter where I go - home, tiny winter home or camper.

I would think that if the Arikayce mouthpiece can survive 5 minutes of boiling, it should handle 10 minutes, but you might want to ask them as I have no experience with their equipment. I do understand the distilled water - I use it or filtered water to eliminate residue on my equipment - I'm always putting multiple gallons in my cart. That way I find no need for periodic vinegar soaks some mention.

My philosophy is to do what is the easiest and still safe, so my routine is very minimalist, but I haven't had an infection needing long-term treatment in nearly 5 years, nor exacerbation in almost 2 years.

Everyone is different in their condition and risk tolerance/outlook on life.

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Replies to "When I wash my pieces, if I am going to boil them immediately, I don't worry..."

Thank you, Sue. I will contact the trainer to ask about the 10 minutes for the Arikayce nebulizing head. I never thought about placing the Pai and Aerobika into a closed container and then shaking to agitate. So simple and definitely reduces the amount of water needed.

@sueinmn Just to clarify, do you use the baby bottle sterilizer daily, or once a week? I am using an aerobika and Pari nebulizer with saline. I rinse in soapy hot water after each use, but boil for 10 minutes weekly. I have a Wabi steam sanitizer and dryer, but have never used it…