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MAC & Bronchiectasis | Last Active: Sep 7 4:51pm | Replies (52)
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Replies to "Sue, very clear explanation. Now I have another question. You mentioned a 1:10 ratio of Dawn..."
When I wash my pieces, if I am going to boil them immediately, I don't worry about covering them with solution. In fact, I often put them in a small storage container and shake them vigorously. I use original Dawn, purchased in giant bottles at WalMart or sometimes Costco, because that is what Dr Joe and his team tested. I doubt any color or scent survive 10 minutes of boiling. I am old-school, using a saucepan and timer as my kitchen has no room for more "stuff" and they are available no matter where I go - home, tiny winter home or camper.
I would think that if the Arikayce mouthpiece can survive 5 minutes of boiling, it should handle 10 minutes, but you might want to ask them as I have no experience with their equipment. I do understand the distilled water - I use it or filtered water to eliminate residue on my equipment - I'm always putting multiple gallons in my cart. That way I find no need for periodic vinegar soaks some mention.
My philosophy is to do what is the easiest and still safe, so my routine is very minimalist, but I haven't had an infection needing long-term treatment in nearly 5 years, nor exacerbation in almost 2 years.
Everyone is different in their condition and risk tolerance/outlook on life.