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Lung Matters Protocol

MAC & Bronchiectasis | Last Active: Sep 7 4:51pm | Replies (52)

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@formergardener

Sue, very clear explanation. Now I have another question. You mentioned a 1:10 ratio of Dawn to water for soaking. If I were to use an ounce of Dawn (2 Tbsp), I would then use 10 Oz of water, but I have been using more water in order to cover the nebulizing cup equipment and the Aerobika at the same time. Does that mean that, for example, I would need 2 ounces of Dawn? It seems like so much, and it already suds a lot. By the way, I came across a Free and Clear Dawn that does not have the color or scent. Websites advertised it at grocery stores and Walmart, Target, but it seems like with some of them that you would need to order online. After physically going to stores, I finally found some on the very top shelf of our local Target. I bought two bottles. I like it because I am sensitive to scents and dyes, and since I am soaking breathing items in it, it might be good to switch.
When the Arikayce trainer came to my house, the kit she gave me included a small bottle of mild dish detergent for soaking. Her instructions, as per the manufacturer of the handset for nebulizing the Arikayce, were to boil for 5 minutes in distilled water after first soaking in mild detergent for 5 minutes. She actually had me go through an entire treatment session while closely observing me.
I am boiling my PARI and Aerobika for 10 min now, but should I also be doing the 10 minutes with the Arikayce nebulizer? So confusing sometimes. Thank you for any clarification from those who nebulize Arikayce.

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Replies to "Sue, very clear explanation. Now I have another question. You mentioned a 1:10 ratio of Dawn..."

When I wash my pieces, if I am going to boil them immediately, I don't worry about covering them with solution. In fact, I often put them in a small storage container and shake them vigorously. I use original Dawn, purchased in giant bottles at WalMart or sometimes Costco, because that is what Dr Joe and his team tested. I doubt any color or scent survive 10 minutes of boiling. I am old-school, using a saucepan and timer as my kitchen has no room for more "stuff" and they are available no matter where I go - home, tiny winter home or camper.

I would think that if the Arikayce mouthpiece can survive 5 minutes of boiling, it should handle 10 minutes, but you might want to ask them as I have no experience with their equipment. I do understand the distilled water - I use it or filtered water to eliminate residue on my equipment - I'm always putting multiple gallons in my cart. That way I find no need for periodic vinegar soaks some mention.

My philosophy is to do what is the easiest and still safe, so my routine is very minimalist, but I haven't had an infection needing long-term treatment in nearly 5 years, nor exacerbation in almost 2 years.

Everyone is different in their condition and risk tolerance/outlook on life.