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Replies to "When my 11 mm. tumor was discovered on Dec. 7, 2021, I asked my oncologist about..."
Thank you for sharing. I am shocked at your oncologist's treatment and handling of you. Too bad you couldn't have found a second opinion. I hope you are enjoying your life. I couldn't tolerate the AI's either nor tamoxifen. I tried them as much as I could for nearly 2 years. I am living my life, too.
My Oncotype was 29 and I didn't do chemo. The Oncotype score for me was totally unexpected and so I also did the Mammaprint and the Mammaprint came back as low risk. I've had 5 doctors tell me they would not have ordered the Oncotype either because I think the initial research was done on people with a tumor of 1cm or more and mine was 8mm. So here I had an Oncotype of 29 and a Mammaprint of low risk, a ki67 of 1%, yet I had a higher Oncotype score of 29. I saw 10 different doctors to get an opinion on whether or not to do chemo with a Oncotype of 29 and they all independently said no. The Oncotype was the outlier and didn't seem to fit with my prognostic values and the Mammaprint so I made the decision of not doing chemo. I will never know if I made the right decision and it still haunts me, but I think the Oncotype is only one thing to consider along wth your other prognostic values. Subsequently the RSCLIN model was published and ironically it too said I was very low risk and I am pretty sure this model was published as another way to take your Oncotype score plus your prognostic value to give you an overall risk. You may want to ask your dr to run this model for you. They could do it in 60 seconds since it is only inputting a few numbers into a model. Its not something you can do on your own, its only a model released to doctors.
I stopped as well! I’m 73 and the Anastrozole was awful. Once I got trigger finger in 3 fingers I stopped. So painful I had to get a cortisone shot! Waiting for a bone scan. I know it kicked me into osteoporosis. They also told me I didn’t qualify for the test either. I’m now feeling better still a little brain fog and joint pain. Nothing like when I was on the pill. I’ll take my chances and 🙏🏻🙏🏻. Best wishes to you 🤗