Thank you this is actually very very helpful.

I think @gently's suggestion is great and made me think of something else - a patient advocate. They used to be called Ombudsmen. In California there is an Ombudsman with the state. In hospitals they have them too. Insurance companies as well. @leximercedes depending on where you live/and your insurance provider try and find who is there to represent you. That is the job of the Ombudsman Office. If you are on something like Medi-cal in CA you can also ask for a hearing. I would hope they have those in every state. But I can only tell you about CA.
I don't know what your MRI says, but it is helpful to look up every single term and familiarize yourself with the words. I had a cyst once which was a fluid-filled sac. The surgeons/doctors over looked it. Going to a new pain mgt doctor he saw it. I paid for it $500 and in 5 minutes all of the pain like you explain was gone. I then took the insurance company to court and got the money back. Sometimes you have to "endure" and kiss a lot of frogs. A ton. Before the right thing happens. All I know is that you have to find some help. You are suffering. Remember that word. Also, please go back to the ER as many times as you feel necessary. You also said you had a surgeon who had an idea of what he wanted to do. He sent you for what I interpret as a "diagnostic test." Did you ever return back to him? Maybe it was just diagnostic and not for pain relief. I have had those and the doctor doesn't tell me its a diagnostic procedure - and I expected pain relief. You need to start open your mouth and getting your needs met when you have all these things. It appears to me that you stay silent and they dismiss you without your needs/questions being addressed. Sometimes we don't think of the question we have until AFTERwards. Find out a way to get your questions answered. Very important! I have been humiliated and pushed around. I push back. Too bad they are offended. It is MY life in the balance. Good luck.