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@sallysue

Indiana Scott, I can't find where to post a question about pain reception in someone with dementia. So I thought I'd just ask you and maybe you know how to post it for other opinions. Or just answer me. My problem is that my sister with mild dementia has terrible pain in her hip or knee or shoulder and sometimes more than one place. I get her prescribed medicine out for her. Twenty minutes later she is walking without a limp and pain free. Her med is still sitting on the counter. She had never taken it and was pain free. Other times she is bent over and with a limp that inhibits walking and says she has no pain at all. I beg her to take the pain med and watch her take it and the pain continues the rest of the day. I can't tell when she has pain or doesn't and her description of pain does not make sense. I have her on (with doctor's knowledge) 660 mg of Aleve twice a day. Do you think she has break through pain but can't tell me where it is coming from? Or has pain that gets treated but she doesn't remember she took anything for it and so remembers the pain for the rest of the day I spite of things I do to alleviate it for her? I don't want her to suffer. What do you think?

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Replies to "Indiana Scott, I can't find where to post a question about pain reception in someone with..."

Hi @sallysue I am glad you posted here and you raise a very interesting dementia related issue for sure!

Unfortunately I am not a medical professional so I cannot answer your question. I do know in the later stages of my wife's neurodegenerative disease she often had a difficult time accurately describing her pain, the level, origin, etc. of it as well.

I will see if someone with a medical background can give us some help on this.

Thanks again!