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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 9 10:31am | Replies (661)Comment receiving replies
Man, this aging process....... Thank you for taking time to try to help!
I have had a positive ANA for decades and run a higher CRP number, I have for many years. Other than Osteoarthritis, no other autoimmune diseases have been identified. My health is good for the most part at 70.
Last month I had, what I refer to as a "flare". My whole body was in pain for over a week. I went into my PCP who I've had for decades. Once again she ran blood tests looking for clues.
My CRP had jumped from a previous high of 7 mg/L to... 80 mg/L...!!!!!!!!!
The only clue was the test for Sjogren's Ab. My result was Sjogren's Anti-SS-A was.. over 8.0..., normal range being 0.0-0.9. The Anti-SS-B was normal range at less than 0.2.
She is convinced this is enough for a DX of Sjogren's. I know medicine is a process of elimination and I have had severe dry eyes and mouth for years. Do I need further testing or is this convincing?
Replies to "Man, this aging process....... Thank you for taking time to try to help! I have had..."
Has your doctor suspected PolymYalgia Rheumatica? When my CRP jumped to 80 and I was in tremendous pain, it was diagnosed as PMR. Prednisone worked pretty fast to get the pain under control, but there is always a threat of it returning. Look into it, pretty interesting.
I don't know what else you would need for a dx. My dr during a flare dx'd me with the same even though the Sjogren's was not positive. My rheumatoid is always highs. the new Tyrava nose spray is helping for the dry eye. Expensive. The drops are a bit tricky to administer bc I find the spray is hard to feel. My eyes are now more bothersome again especially to light.
Good luck! Hope you find what you need and feel better! We are about the same age....turn 70 in December. Sometimes a challenge in itself!
This IS your Dx IMHO
Yep! You're a Sjogren's warrior
In my opinion this is absolutely enough. This illness can be so hard to diagnose I would take it and run with it. Thank God you have a doctor aware of Sjogrens. Now it’s time to find a medication that works for you and the good news is for us we have many to chose from. Good luck please keep us posted. We care. Diane.
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Does your doctor have a treatment and care plan in mind for you? What does she suggest?