← Return to Newly diagnosed with Neuropathy - Advice?

Discussion

Newly diagnosed with Neuropathy - Advice?

Neuropathy | Last Active: Sep 12 8:15am | Replies (49)

Comment receiving replies
@ray666

" I have a daily exercise routine at home, and schedule professional sessions when I need some tuning up."

Good morning, Debbie. I like the simplicity of your approach: a daily routine at home and professional coaching when you feel you need a "tune up." I'm a decision point right now. I've been enjoying the benefit of at home coaching, covered by my insurance, not because of my PN but my sepsis. That coverage ends on 9/3. Thanks to the coaching I've been getting, I've cobbled together a reasonably good at home routine, but that professional coaching has only a few days to go. I know that I'll need an occasional "tune up." It's time for me to have a couple of chats with my various doctors, chiefly with my primary, about either an extension to my coverage (which may not be possible) or some out-of-pocket coaching. I know how vital this is, especially (for me) maintaining leg strength.

I was reminded only last evening of the importance of maintaining leg strength: I did another one of my unplanned "sit-downs," turning too abruptly and plopping onto a nearby ottoman. I'd prefer not to call my unplanned "sit-downs" falls (although that's what they are). I got up (laughing a bit at how challenging it was to get up :-)), uninjured, but reminded once again of the absolute importance of maintaining good leg strength.

Cheers!
Ray (@ray666)

Jump to this post


Replies to "" I have a daily exercise routine at home, and schedule professional sessions when I need..."

Hi Ray- I’m a retired OT. The best gift a patient can give a Rehab staff person is to be ready to “graduate”- you know you’ve done your job and done it well as, in your professional judgement, the patient is ready to be released from care, to carry the program on and to put your instruction to use on their own.
It’s common for people to find it hard to let go of the rehab folks, especially in the home setting. We are a new friend, visiting and working with you one-on-one, bringing positivity and hope. There is also often a bit of “magical thinking” that somehow, some way, this person has the key that will make me better.
If your coach really felt there was more to do, they would be on the phone to your PCP and FAXing notes and making arguments to the insurance people to extend services. It’s hard for Rehab folks to say goodbye too and it can be a relief when the insurance says “no”, as it’s an exit everybody understands and won’t be mad at you.
Don’t worry, do your program, hug your partner, and enjoy a good cup of coffee on the porch or deck or treehouse (wouldn’t that be fun?!).