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Legs weakness with Idiopathic Feet Neuropathy

Neuropathy | Last Active: Oct 4 3:03pm | Replies (48)

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@dbeshears1

Welcome to Connect Margaret! I’m in the same group as @ray666 and @njed , but I get extremely cold (& occasionally hot) feet & hands and have a little pain through my lower leg nerves that I keep managed with Gabapentin 3x daily. While my leg muscles are reportedly strong, the communication with my nerves is the big piece lacking, so it is hard to endure any long amount of walking.

Key to me to continued walking around is Physical Therapy. I must keep my legs as strong as possible to help compensate for the lack of nerve cooperation. I have exercises givens to me to do at home and return to office PT sessions when I feel I might be regressing or a shift in my PN might require a tune-up or readjustment. I’m fortunate that my insurance is generous with the number of sessions I can get per year.

A lot of folks on here have a lot of trial and error with vitamins that can help you. I think we all have to find what works for us. I like to take B12 supplements (not B6), a multivitamin, and a little dosage of Magnesium, and feel if I stop those, (or in the case of Magnesium, INCREASE the dose when I nonchalantly just grab any bottle from the store shelf) that I feel a little more tiredness or leg weakness. You’ll find a lot of discussions in this forum on vitamins and diet that might give you ideas.

I wish you the best in finding the right regime for you in keeping active while living with PN. Debbie

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Replies to "Welcome to Connect Margaret! I’m in the same group as @ray666 and @njed , but I..."

Did I read this right? Are you saying if you take TOO MUCH magnesium, it makes you feel worse? How much do you find is the best amount for you?